Sports : Ensuring Equal Opportunities for Children with Special Needs

Sports : Ensuring Equal Opportunities for Children with Special Needs

Sports : Ensuring Equal Opportunities for Children with Special Needs

PVSW CHILDREN PLAYING AT BEAGLES BASKETBALL INDOOR STADIUM MALLESHWARAM

Children blossom with extra-curricular activities. Unfortunately, recreation, hobbies, extra-curricular activities are getting tougher and competitive and losing their charm due many reasons. We grew up playing seven stones, galli cricket but alas, there is no space to play these activities any more. It is a medical fact that everyone should get at least 60 minutes of moderate to vigorous physical activity each day and every child is given the opportunity to learn, play, and thrive. Participating in sports helps not just in physical development, but has many hidden pluses. Sports improve memory, learning, problem-solving, and socialisation. All these are life skills which help in future life and workplace behaviour, bringing about a huge boost to self confidence.

This is especially true for children with special needs, who often face unique challenges in accessing these opportunities. The world is now becoming increasingly aware of diversity and inclusivity, but children with special needs have to battle their own problems of health, learning, coping with life skills and also strive to be included in a world which is highly competitive. Physical activity helps in manage weight which is often an issue with children with special needs.

Break Down Barriers – Create Inclusive Environment
There are many barriers, some are physical, such as inaccessible playgrounds, or social, such as exclusion by peers/society. By making simple changes we can create a more inclusive environment where all children can play together, learn from each other, and build lasting friendships

Creating opportunities for sports/play requires a concerted effort from all stakeholders, including parents, educators, policymakers, and the community at large. This may involve making physical modifications to playgrounds to make them more accessible, providing training to teachers on inclusive practices, and promoting awareness and acceptance of children with special needs among peers.

Let’s join hands together to create these opportunities.

In such a world, we have found a rainbow.

A case in Study : Tamahar Trust experimented with taking their young adults with special needs to Beagles basketball court, Malleswaram. On day 1, out of 6, one of them started playing as he had some experience playing at his apartment block. The rest just picked up the ball and were found running around. They were not given any instructions, or goals. The coach wanted them to enjoy the experience, have fun. From the 3rd day onwards, coach gave one or two instructions and let them continue their uninhibited play. On day 6, four of them were able to put the ball in the basket. They were beaming, full of pride, enjoying the experience and wanted to play every day!!

We are thankful to Beagles for providing this opportunity to our children. We also want to extend our thanks to Dr. Ashwathnarayan Gowda – MLA, former Dy CM, Manjunath Raju (ex-corporator and Beagles trust vice chairman) for supporting this endeavour. We hope to get their ongoing support and are able to provide this opportunity to many more.

Empowering Children with Disabilities through Holistic developmental intervention program

Empowering Children with Disabilities through Holistic developmental intervention program

Empowering Children with Disabilities through Holistic developmental intervention program

Disability should never be a barrier to a child’s growth and development. In a world that often overlooks the needs of Children with special needs, auxiliary programs play a crucial role in bridging gaps and unlocking potential. These programs, ranging from educational support to recreational activities, provide avenues for children with disabilities to not only learn and grow but also to feel valued and included in society. 

Understanding Holistic approach

Intervention programs for children with special needs are initiatives designed to cater to their unique needs. These programs encompass a broad spectrum of activities and support systems, including : 

  1. Educational Support : Tailored educational programs help children with disabilities overcome learning barriers. This includes special education services, assistive technologies, and individualized education plans (IEPs). 
  2. Physical Therapy : These services are essential for children with physical disabilities. They focus on improving mobility, strength, and coordination. 
  3. Occupational Therapy : Services that help children develop better fine-motor control, assisting in being independent in all activities of self-care, vocation, play, etc. 
  4. Speech Therapy : These services help children learn different means of communication including speech. They also work on improving oro-motor structures, helping swallowing, etc. 
  5. Vision Therapy : Specialised therapy program aimed at improving functional vision of children with vision loss due to conditions like Cortical Visual Impairment. 
  6. Social Skills Development : Programs aimed at enhancing social interaction help children with disabilities develop essential communication and interpersonal skills. 
  7. Recreational Activities : Inclusive sports and arts programs provide a platform for children with disabilities to explore their talents, engage in physical activity, and socialize. 
  8. Yoga Therapy : Yoga is known to calm people, help them focus better, breathe better. Regular sessions at Tamahar have helped over-active children to control their emotions better, become and centred (Reduce anxiety, improves gross motor, flexibility and strength, concentration and body awareness). 
  9. Music Therapy : Music has been known to influence emotions. Our therapy at Tamahar is aimed at improving attention, improving emotional disturbances in children. It also promotes improved voice modulation, breathing techniques. 
  10. Mental Health Support : Counseling and therapy sessions are crucial for addressing the emotional and psychological needs of caregivers who have to provide loving care to children who are dependent on them for extended periods. 

The Impact of Holistic Intervention Programs

  1. Boosting Confidence and Self-Esteem : Participation in these programs helps children feel more capable and independent, fostering a positive self-image. 
  2. Enhancing Social Integration : By interacting with peers and participating in group activities, children with disabilities develop a sense of belonging and inclusion. 
  3. Improving Academic Performance : Tailored educational support ensures that children with disabilities receive the attention and resources they need to succeed academically. 
  4. Promoting Physical Health : Regular physical activity through tailored sports or therapy improves overall health and well-being. 
  5. Emotional and Psychological Well-being : Mental health support is vital in helping these children cope with challenges and build resilience. 

Success Stories

There are numerous instances where such holistic programs have made a significant difference. For example, a sports program for children with disabilities might not only teach them a new skill but also instill a sense of discipline, accomplishment and teamwork. Similarly, art and music therapy sessions can unlock new ways for children to express themselves and communicate. 

In 2022, Likith, a once anxious child, found joy at Tamahar after being  admitted to the Early Intervention program. Initially unable to even sit without support and reliant on his mother for all his needs, Likith’s transformation was remarkable. He overcame his fears, started to interact with peers and interventionists, and eventually learned to walk with a K-walker. With the continuous support of the Tamahar team and his family., Likith now walks independently using the K-walker with no assistance and even takes a few steps without the walker. 

Implementing Effective Holistic Interventions

To create effective Holistic Interventions, certain key elements must be considered : 

  1. Inclusivity : Programs should be designed to be accessible and welcoming to all children, regardless of their disability. 
  2. Customization : Understanding that each child’s needs are unique, programs must be flexible and adaptable. 
  3. Professional Guidance : Trained educators and therapists should lead these programs to ensure that children receive expert care and support. 
  4. Community Involvement : Engaging the wider community fosters a more inclusive environment and raises awareness about the importance of supporting children with special needs. 
  5. Continuous Evaluation and Improvement : Regular assessment of these programs ensures they remain effective and relevant to the children’s needs. 

At Tamahar, Holistic Interventions for children with disabilities are not just about providing support; they are about empowering these young individuals to realize their full potential. By addressing their educational, physical, social, and emotional needs, we can create a more inclusive and supportive environment where every child has the opportunity to thrive. It’s a collective responsibility that promises a brighter future for all children, regardless of their disabilities. 

Nurturing Potential

Nurturing
Potential

Nurturing
Potential

Introduction : In the bustling city of Bangalore, Tamahar stands tall as a beacon of hope for children with developmental disabilities. At the heart of our mission lies the commitment to inclusive education, a journey filled with compassion and tailored support. In this blog post, we explore Tamahar’s strategies for supporting students with Down Syndrome while shedding light on the causes of Down Syndrome and the mental health services integral to our holistic approach.
 

Understanding the Causes of Down Syndrome : Before delving into our functional education strategies, let’s first understand the causes of Down Syndrome. Down Syndrome, also known as Trisomy 21, is caused by the presence of an extra copy of chromosome 21, resulting in developmental and cognitive problems. The unwavering spirit at Tamahar aims to embrace these differences through specialised intervention.
 

Functional Education Strategies at Tamahar :

  1. Personalized Learning Plans : Understanding that each child is unique, Tamahar crafts personalized learning plans tailored to the strengths and challenges of each student with Down Syndrome.
     
  2. Collaborative Teaching Model : In the spirit of holistic intervention, our educators collaborate seamlessly with therapists to foster a team approach dedicated to the wonderful personality development of every child.
     
  3. Assistive Technologies for Enhanced Learning : Embracing the digital age, Tamahar integrates cutting-edge assistive technologies into the learning environment, empowering students with Down Syndrome to engage with educational materials independently.
     
  4. Social Inclusion Initiatives : Beyond academics, Tamahar initiates social inclusion programs, allowing children with Down Syndrome to interact with their peers, cultivating awareness, acceptance, and creating an inclusive society.
     

NGO in Bangalore – Tamahar’s Commitment : Situated in the vibrant city of Bangalore, Tamahar is more than an NGO; it’s a community-driven force committed to transforming the lives of children with developmental disabilities through inclusive intervention.
 

Mental Health Services at Tamahar : Recognizing the integral connection between mental health and overall well-being, Tamahar extends its support beyond academics. Our mental health services provide a safe space for children and their families to express themselves, fostering emotional resilience and a positive outlook on life.
 

Conclusion : As we navigate the landscape of inclusive education at Tamahar, we invite you to join us in this transformative journey. Let’s celebrate differences, break down barriers, and nurture the potential within every child, especially those with Down Syndrome. Together, we’re not just an NGO in Bangalore; we’re a community dedicated to shaping a brighter and more inclusive future for all.
 

The Invisible Women

The Invisible
Women

The Invisible
Women

The Invisible Women

When I met Sunitha* in 2012, she was sad, with suicidal thoughts. She had centered her life around her child who had a severe disability and she was made to believe she was responsible for the state of her child, and the child was her responsibility, and so she had to push herself more and try harder, to make her child “normal”. It took 8 long years of constant support and counselling for her to accept the child without wanting to normalize things, to accept help from others, and to let go of the things that couldn’t be changed. Sadly, she is not alone in this situation and from my experience I can say this is the story of the majority of women who function as informal caregivers for their children with disabilities.

For those of us working in the disability sector, this is a common experience. It is a documented fact that intersection of gender and disability can be lethal and women with disability have worse outcomes. In all of our efforts, we tend to highlight how disability has a different impact on women and girls. However, missing in these dialogues are the other women, the invisible women, who silently care for their children with disabilities. 


Picture Credits Pixabay

There is a vast body of literature on every aspect of motherhood. What I would like to mention is how the situation of mothers becomes even more complicated in the Indian context, made worse by the prevailing gender order. Despite all our efforts, the society refuses to learn about our actual experiences as mothers and to separate the mother from the woman. An ideal of motherhood gets thrust upon us and we are often forced to live up to it. Take this dogmatic view of motherhood and combine it with the twisted and widely held belief that a disability is somehow a defect, and more so the result of something the mother has done during pregnancy, which is often detrimental to the health of a mother caring for her child with a disability.

In my 30 years of working in this sector, I have been  with many women who have children with disabilities. Their resilience is compelling, yet their despair is also heartbreaking. When I sat down and tried to put together all of their challenges and struggles, a common theme emerged: that of blame. The blame placed on her by the society and often by members of her own family for the disability of her child. These women then go on to internalise the blame and toil away their lives to correct it.They are hurt, disappointed, and the feelings of inadequacy are amplified when the world sees their child as different. They refuse to see themselves as individuals and their future is invariably entangled with that of their child’s. Most mothers I meet are repressed and refuse to believe they even deserve to be happy. Their personality vanished and their life a blur. Their road to recovery is a long one, the first step is to make them see themselves as distinct human beings with their own needs and wants. 

It may seem like I have overlooked the other half of parenthood, namely the father. They are as important as the mother when it comes to caring for a child with disabilities but that’s a conversation reserved for another day. On this day for global celebration of women, I would like to bring to the fore the personhood of these women, the silent caregivers. I want to remind them that they do not owe it to the society to exist as saviours, paragons of motherhood, as inspirational stories, as beacons of hope and sacrifice, I want to remind them that they can just simply exist.

*Name Changed

About the Author:

Vaishali Pai – Founder & Director at Tamahar Trust, Malleswaram, Bengaluru

An Occupational Therapist (OT) by profession and a Gold medallist in Bachelor’s and Master’s degree with three decades experience working with big names like Spastics Society of India, Mallya Hospital, Vydehi Institute of Rehabilitation and Align Centre. Vaishali has worked in child and adult rehabilitation in varied situations and facilities throughout her career. As a certified Early Interventionist, she is adept at handling infants and newborns, even as young as 1 week old.  She has served as the Chair of ORDI Organization for Rare Diseases India Care Coordination Committee, member of the Board of B D Tatti Annavaru Memorial Trust of Laxmeshwar, Dist. Gadag, on the board of APD – Association of People with Disability, a 60 year organisation working for disability, and also on the board of Disability NGO Alliance, a consortium of disability NGOs in the state of Karnataka. She is also the Civil Society member of an Ethics Committee of a medical research institute.

Contact:

Manisha Raghunath

Communications Manager – Tamahar Trust

Email: manisha@tamahar.org

Red flags in a child’s development parents must never ignore

Red flags in a child’s development parents must never ignore

Red flags in a child’s development parents must never ignore

Red flags in a child’s development parents must never ignore

Every child his or her own pace of development, but there are some definitive signs that indicate a deeper problem and warrant an immediate medical consultation.

We’ve compiled a list of generic developmental delays/issues that all parents must be aware of to realize that their child needs help. Please note that these signs do not necessarily mean that your child has brain damage or mental health issues, but if you find yourself agreeing to the issues listed below, you must see a doctor right away.

There are some signs that are big red flags in themselves. Even if the child does not show any other symptom, this one symptom calls for a consultation. Such issues have been marked with an asterisk sign (*) in the list below.

If, god forbid, your child demonstrates these delays, and you need help/guidance on the next steps, feel free to reach out to Tamahar via our FB page, website or the contact form given on this blog. You can also visit us our centre at Malleshwaram, Bangalore. (Near Malleshwaram Railway Station)

SIGNS OF DEVELOPMENTAL DELAY

Pregnancy

  1. Complications during the 9 months of pregnancy.
  2. Excessive vomiting etc, even after the 4th month of pregnancy.
  3. Baby not moving adequately inside the womb till birth.

Delivery

  1. Pain and contractions before the bag burst and the water leaked.
  2. Caesarian delivery due to problems during birth.
  3. Baby did not cry soon or right after birth.

Age : 0-1 year

  1. Baby excessively quiet or cranky in the hospital after birth, or continued to be quiet or cranky in the next 4-5 months.
  2. Baby unable to suck/breast feed in the days following the birth, or doing so with difficulty.
  3. Baby had breathing difficulty or a seizure episode soon after birth/stay at the hospital.
  4. Repetition of such problems after discharge, at home.
  5. Baby did not feed adequately.
  6. Baby did not pass urine easily.
  7. Baby not looking at the mother and the familiar faces after few weeks.
  8. Does not smile at them, hold on to the mother’s finger while feeding, settle down comfortably when picked up.
  9. Does not start holding up his/her head, roll over, reach out with hands, kick feet in air, laugh, gurgle, be startled by loud sounds or understand when scolded.
  10. Does not come up to sitting independently, stand up, take a few steps.
  11. Does not babble.
  12. Does not want to convey something when talking – not saying something meaningfully, but just randomly repeating words without any purpose.
  13. Does not enjoy songs/nursery rhymes or does not want to join in on the songs.
  14. Does not look at books/pictures.
  15. Does not point at things.

Age : 1-2 years

  1. Baby not comfortable with strangers and familiar people alike after 1 year of age.
  2. Not responding to command.
  3. Use of words restricted to 4-5 keywords.*
  4. No speaking in phrases.
  5. Falling down often.*
  6. Poor eye-hand coordination – unable to throw a ball in a bucket at a distance.*
  7. Difficulty in calming down. for example – continuous crying over trivial matters.*
  8. Inability to sleep for a long time.
  9. Peculiar tastes in food – Would not eat a certain texture of food, or a certain color of food.
  10. Walking started at an age of 1.5 yrs or higher.*

Age : 2-3 years

  1. Unable to re-tell a known story in the right sequence.
  2. Is not interested in keeping a conversation going.*
  3. Likes repetitive games.*
  4. Hyperactivity or complete disinterest (Either extreme).*
  5. No pretend play.*
  6. Not interested in books / not reading even picture books.

Age : 3-5 years(Pre-school)

  1. Hyperactivity.*
  2. No play with peers.*
  3. Staying by self in a group.*
  4. Very good imitation skills.
  5. Disruptive behavior with peers – pinching, pulling hair, biting, hitting.
  6. Repetition of classes over 2 years or more.*
  7. Inability to play with peers in park/playground environment.

Age : 5+ years (School)

  1. Inability to maintain friendships.*
  2. Consistently bad marks in subjects* – despite tuition/after school classes.
  3. Extremely Bad handwriting – illegible.*
  4. Continued disruptive behaviours.*
  5. Recurring symptoms like stomach pain, headache.*
  6. Hyperactivity may or may not happen.

 

 

Featured image : Painting of an Indian Mother by Ilayaraja

Tamahar Trust – Penning Down Our Journey of the Last 11 Years

Tamahar Trust – Penning Down Our Journey of the Last 11 Years

Tamahar Trust – Penning Down Our Journey of the Last 11 Years

An idea is a seed that first happens before any action. It took me some years to make my dream come true. And this is exactly how the seed of Tamahar was sown. ~Mrs. Vaishali Pai, Founder-Director, Tamahar Trust

 

Tamahar Trust-Founder-Director Mrs Vaishali Pai
Our Founder-Director Mrs Vaishali Pai

 

We completed 11 years this year, in January, just before the pandemic hit the world, we celebrated our 10 years, Dashanjali, a celebration of ten years of hard work, persistence, learning, and a never-give-up attitude. It was also an occasion for us to recognize the relations we’ve built over the years and an opportunity for us to forge new bonds as we grow our Tamahar family. As we have begun our 12th year of working toward a better life for children with special needs and their families, we’re going on a small flashback to our humble beginning.

Our journey began in the year 2009 with just 1 program having 4 children, 1 employee, Tripti BG, and 1 friend, Sree Rao, who was hell-bent to help our Founder-Director, Mrs. Vaishali Pai succeed.

 

Tamahar Trust programs
Our first employee and now, the COO of Tamahar Trust, Mrs. Tripti BG

 

From then to now, we’ve grown organically, through word of mouth and referrals. At 45+ employees across programs and operations teams, we stand strong as a family committed to ensuring the best for our children.

 

A session in progress at Tamahar Trust
A session in progress at Tamahar Trust

 

A mission to empower as many children with special needs and their families as humanly possible.

 

Tamahar Trust Staff
Our staff who are our life force

 

This we do through our strong workforce – a group of almost all-women whom we hired simply because they had in them, the passion to learn and contribute meaningfully while carving a better future for themselves. So, apart from formally qualified professionals especially in physiotherapy, occupational therapy, and mental health spaces, we also employed women who had a high emotional quotient which held an extremely important place for us, over and above their formal educational qualifications. We were also looking for those women who were passionate about creating a better future for themselves and their families, had within them, an immense love for children, and caring nature. This we say with pride, we have managed to skill women who would have otherwise continued to do unskilled jobs and created job opportunities improving the lives of at least 40 families.

We have not restricted our training to just our staff but have ventured into awareness and advocacy programs as well. Mrs. Vaishali Pai and our COO Mrs. Tripti BG have taken the building blocks of the programs at Tamahar to various parts of the state as well as a few programs in other parts of the country. This has helped us train more individuals and organizations in the areas of special needs and disabilities.

 

Tamahar Trust-Remover of Darkness
Our children’s families are an integral part of our programs at Tamahar

 

As more children came in, the number of programs increased and we began services for parents as well, recognizing their individual needs separate from their child and the needs of the family to understand the child. In time, we found passionate partners to provide various therapies to our children and parents too. We think the best thing we did with Tamahar was that we never stopped searching for more, for better. We have always strived for excellence, to be the best service provider possible for our beneficiaries, never afraid to take risks, sometimes when we were not sure where the next salaries would come from.

We are proud to say that Tamahar has come to be a nurturer not just for families, but for the employees too. Learning is in our DNA and each one of us is striving to be better in our individual way, and it all boils down to one thing – how can I help my children and parents better? They are at the core and WE are BECAUSE of them and FOR them! The road ahead is filled with more opportunities to make a difference.

After having taken the last year slow for a moment and basking in the warmth and success of the decade gone by, we catch our breath, and right after, we charge ahead, not letting COVID-19 dampen our spirits. There is much to be done. Bridging the demand-supply gap by creating more resources and contributing to the collective knowledge of the sector through research and training, creating more service opportunities.

“There are miles to go before I sleep, there are miles to go before I sleep.”

Know More – https://tamahartrustblog.wordpress.com/2017/03/13/empowered-families-encourage-better-development-in-the-child/

Mother is Our First Teacher | Mother’s Day Special from Tamahar

Mother is Our First Teacher | Mother’s Day Special from Tamahar

Mother is Our First Teacher | Mother’s Day Special from Tamahar

Mother is Our First Teacher | Mother’s Day Special from Tamahar

‘Home is the first school and mother is the first teacher’, and most of us have experienced the love behind all this kind of teaching (sometimes army style), smiles behind tears, and the joy when we succeed.

2020 affected everything drastically in ways we had not experienced before. Schools were closed and all classroom sessions were stopped. Children missed socialising the most. Like all other institutions, Tamahar had to stop the classroom sessions too and start online classes, something we had not dreamt about. Online interventions for children with developmental delays, whoever has heard about it… We were unhappy, disappointed and clueless.

Never in our wildest imagination did we expect the spectacular change it brought about. With the help of the mothers of our special children who became hands-on interventionists at home during the online sessions, we could run our programs as effectively as before.

This Mother’s Day, we at Tamahar would like to congratulate all the mothers who have been supporting us and helping us to help them and their children during this pandemic. A special thanks also to our interventionists who have had to train themselves to work online, observe the children, give suggestions, demonstrate activities, all with a smile; sometimes on the small screen of their cell phones, some of whom were learning to operate these gadgets for the first time, some from underprivileged backgrounds, and some who are mothers of children with special needs too.

We wish all the mothers out there a ‘Happy Mother’s Day’; thank you for your unconditional support and love.

On this occasion, we would like to run a campaign, #MotherIsOurFirstTeacher to extend our support to our team who are working tirelessly day and night to help these children with special needs and their families and to the mothers who are helping us to help them during this pandemic.

To know more about our work, please visit www.tamahar.org.